Tuesday, April 12, 2011

7th Year Wedding Anniversary .. April 10, 2011

Our beautiful son is 18 days old and today is our anniversary. Maddox is the most precious gift for our anniversary this year. To be honest, the scripture in Psalms which speaks of children as an inheritance is something I've never come to appreciate until I became a parent. Maddox is truly an inheritance and a huge blessing.  His most precious life is something we never take for granted each day we are with him. He is constantly fighting for his life. We continue to cheer him on and pray with him so he can receive the strength he need to endure. We are sooo PROUD of our son and we LOVE him more than we could ever imagine. He has come a long way and shows us how strong he is. He has overcome multiple surgeries, ECMO and a number of other things.We tell ourselves and tell Maddox that there is no way he can give up now.

Maddox is not doing too well today.  Earlier today his saturation or oxygen levels went to the low 60s.  It was concerning. At a minimum, the doctors wanted him to stay at 85. They would have preferred the 90s but given some issues they were trying to work through, they were content with 85.  Since the day of his birth never had his numbers been so low. When he was born it was in the 50s. So that is why he was placed on ECMO. ECMO is not a route that can be repeated from a medical standpoint but even if that was possible we will not put our son through that again.  His numbers did rebound to around 80 but it took a very long time.  This is when the doctors had "that" talk with us.  He is very sick, they've maxed out of all that they can do and the outlook is dim.  Every time he moves or is handled by someone his numbers go down. So they had to raise his morphine to sedate him even more. Along with that they had to give him paralytic medication to paralyze him because when he would move, his numbers would immediately go down.  Later this evening his numbers dipped to the 60s.  We stayed by his side until midnight and there was no improvement. We will go visit him again in the middle of the night. The weight of our heart just fell to the floor. I can't stop crying. We both continue to pray with Maddox and repeat to Maddox that he will get through this. We need our baby son. Please continue to pray for our baby boy Maddox.

 Our son celebrates our anniversary with us.. :)

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